While getting clinical trials down in western countries seems the road forward, we have found great hesitancy for our people in India to get experimental. To make patients in the kidney community understand the true value of such studies, a special session was held with Dr Arvind Canchi.
Kidney Warriors Foundation is grateful to have some huge hearts willing to help. Our initiatives would not have been successful without their contribution. If you feel inspired by them, please donate to help our cause. Donations made to Kidney Warriors Foundation are eligible for tax exemption under section 80G.
Our journey during the early days provided emotional support, guided patients on treatments, doctors and hospitals through Facebook. Meanwhile, we carried out a lot of internal research to gather causes for end state kidney disease, years since acquired and general employment, education status, and consolidated all the data gathered. Through engaging conversations, patients expressed their positive, “feel-good” moments, while caregivers found a platform to give vent to their burdens and outbursts about being isolated from the public and family circles.
Realization came that our healthcare system needs to address concerns of the middle-income group as costs of treatments and medicines for chronic kidney disease is a perpetual outflow without increased sources for management in the absence of public healthcare/ insurance for preexisting health conditions. Our Founder, who is part of the National Oversight Committee for Dialysis Programme has been communicating with the Prime Minister and Health Ministers through a detailed Memorandum to make them aware of our patients’ problems, and give them a glimpse of the harsh realities of this closed community who shun speaking about their sorrows, hardships and pain.
Many a time, patients have succumbed to the disease after the family has sold off their assets, wiped out their personal savings, and even reached out for help from the public. The financial burden wrecks homes, while the loss of lives leave families totally shattered. Their efforts to return to sensibility is a long walk through lonely roads as they struggle to find the strength to stand amidst the crowd, silent on the CKD episodes.
Our strategies to help patients are developed based on the path traveled and touching the weak pulse to plunge in.
After huge personal funding of ₹10 lakhs on seminars, books, website & promotions while donations were almost ₹18 lakhs over a few years, we approached many pharmaceutical companies and were lucky that Biocon Biologics tied up with us to fund some initiatives.
Two major decisions in 2021 set us on the road to serve community in a structured way.
- Public Private Partnership in Patient Funding was the game changer. Introduced during the spurt in SARS COVID and unemployment due to companies closing down or retrenchment, we decided to give support of ₹1000 each for six months to help patients buy medicines.
- Kids with Acute Kidney Injury to receive emergency fund of ₹50,000 for continued treatment
- 99 patients (18 states) received ₹1000 for 6 months;
- 2 patients received part payment for a fistula surgery;
- 3 Kids with AKI received a financial support of ₹50,000 each
- 2 kids got emergency medicines totaling ₹36,775;
- 1 kid’s higher education fee of ₹35,000 was paid;
- Other Trusts received a donation totaling ₹111,500.
AKI support for kids below age 14 years:
A unique initiative to save kids from end stage kidney disease was launched. The shock that young parents face when a baby is hospitalized can be understood by anyone. At a time when treatment by emergency dialysis to kick-start the kidney is suggested, apart from the growing uncertainty and fear, the worry about long-term financial strains looms large.
KWF offers ₹50,000 for treating kids with acute kidney injury. This support generates a lot of HOPE. This dialysis treatment is a lifesaver!
Kidney Warriors Foundation has helped three kids in 2021 and one kid in April 2022. The treating doctors refer such cases to us after kids are admitted in the ICU and when they discover parents are unable to bear costs of treatment. If you wish to help us in improving lives of kids, please feel free to donate funds. You will get 80G benefits.