News

Genetic Kidney Diseases: Early signs and tests

Genetic diseases can affect many members of a family over generations. Learning to catch early signs of the disease can enable effective treatment, since it can help to change the course of the disease or prevent its advancement. In a webinar moderated by Anjali Uthup Kurian, Dr. Sree Bhushan Raju, Professor and Head, Department of Nephrology at Nizam’s Institute of Medical Sciences, Hyderabad explained the genetic causes of kidney diseases. Although a difficult area of study, Genetics is important since every aspect of an individual’s external and internal features is determined by his genes. Dr. Raju establishes that having a family history of diabetes, hypertension, heart disease, are genetic risk factors along with obesity, race and ethnicity.

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Understanding Biopsy in-and-out

An interesting webinar on the diagnostic procedure known as biopsy was held on September 9, 2020. The guest speaker for the event was Dr. Narayan Prasad, Professor, Department of Nephrology, SGPI, Lucknow, and the event was moderated by Maryann Manasseh and Mr. Anand Lal Banerjee. Dr. Prasad interacted with participants in Hindi and English, explaining in minute detail, going into all the intricacies of the need, process and outcome of a kidney biopsy. He began by showing a video of a biopsy procedure being carried out to demonstrate the precision with which it is conducted.

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An informative exchange of questions and answers on various kidney issues with Dr. Balasubraniam

As kidney warriors, we are often plagued by many doubts and worries. Due to lack of time or resources, we may not get a chance to get them addressed during our routine doctor appointments. In this fifth episode of the Kidney Warrior educational series, we got a unique opportunity to get answers from Dr. Raju Balasubramaniyam to several pertinent questions. The exclusive question and answer session was hosted on 8th September 2020 by KWF, and moderated by Maryann Manasseh and Shantanu Saha.

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Kidney warriors speak about their life experiences with CKD

Patients with CKD, undergoing dialysis, or post-transplant, have to deal with various issues and complications related to disease management. While health issues assume priority, dealing with work related matters, concerns about a career, managing finances, etc. are also issues that require equal attention. Being able to successfully strike a balance between all these will ensure a happy and stress-free life, keeping one motivated to remain active and productive in spite of kidney disease. 

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HLA and Antibodies

Our third event, the first one in Hindi, was on a highly specific area related to the preparation for kidney transplantation. This episode was hosted by MaryAnn Manasseh who was joined by Harshit Bhatia, a transplant recipient and member of KWF.  In this episode, Dr. Amit Langote, Nephrologist at Apollo Hospital, Mumbai, educates us about HLA and Antibodies and the role they play in transplant.

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Insights and progressive developments in transplantations in India

The second event in our series of educational webinars on 29th August 2020, sought to educate the warriors on why transplant is the best treatment for ESRD patients. The webinar hosted by MaryAnn Manasseh, gave us an insight into the progressive development in transplantation in India. Dr. Sundar Sankaran, renowned Nephrologist from Manipal Hospitals, Bengaluru is head of International transplant services, and also founder member of various other Nephrology organizations. He explained how a transplant enables one to lead a near normal life with improved physical and mental health.

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Right Steps to Manage Dialysis And The Journey of a CKD Patient

KWF started its series of educative webinars on different aspects related to kidney disease, with the aim of educating patients, in order to equip them with the right information required to understand the disease, and know how to manage it. The series kick started with its first episode on 22nd August 2020, with a session hosted by our own warrior-caregiver Maryann Manasseh, who has been with us as the Voice of Patients in KWF. Dr. Avinash Ignatius, nephrologist and member of the KWF family gave a brief introduction about the setting up of KWF and its journey so far, highlighting its purpose and aims. The webinar series intends to fulfil the need to continue the activities of KWF in the background of the COVID 19 pandemic, which has put a halt to the educational events that were regularly conducted in various cities.

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In 2013, at the World Congress of Nephrology, the International Society of Nephrology made the vision statement for the world to prevent deaths due to treatable acute kidney injury (AKI). Each year there were 13.3 million reported cases of AKI, with developing countries burdened with approx 11.3 million. Working towards this ambitious project, International Society of Nephrology launched the #0by25 campaign, to reduce preventable deaths from AKI across the world by the year 2025. The aim was to create global strategies for early diagnosis and treatment of AKI among patients with reversible diseases. 

This initiative focused on bringing in infrastructure, training and education through need based projects. These were particularly designed to meet the needs of developing countries and disadvantaged populations. 

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Women across India, living in rural areas face similar issues: Long working hours, poverty, financial constraints, illiteracy, lack of proper hygiene, unconcerned husbands, and medical complications. Poverty, illiteracy and lack of medical facilities inhibit women from reaching out to the nephrologist in time, thus delaying treatment. Their faith in local quacks proves to be a major hindrance. A vital issue is the marriage of young girls who have been afflicted by the disease. Questions of who will marry them, will they survive, will they concieve? – form an endless list. KWF has started campaigns towards creating awareness amongst these women. 

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All through its three years of work, while Kidney Warriors Foundation has been helping people diagnosed with kidney disease in various ways, we have consistently believed that being diagnosed with kidney disease is not the end of life. A patient should not stop living, and should not give up, but fight back as a warrior. The best way to do this is to know the disease, catch early signs, and know how to manage it, so that one can live life in the best way possible. 

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CHANGE THEIR WORLD. LET US ALL JOIN HANDS AND HELP EACH OTHER.