News

Online Yoga classes conducted by our caregiver member Saurabh Agrawal

For people with CKD, physical activity is imperative in order to overcome the manifold side effects of dialysis and medications. Although walking is considered the best form of exercise, it can be supported by other forms for better outcomes. Yoga is one such form that can be practiced by people of all age groups for greater flexibility, better muscle strength, improved bone strength, increased blood flow, improved heart rate, and control of blood pressure and blood sugar. It also helps in relaxation which, in effect, improves sleep.  Responding to the need expressed by several members of KWF to include meditation and relaxation as part of a patient’s routine, Saurabh Agrawal, a certified yoga instructor, volunteered to conduct yoga sessions for the members.

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Post Transplant Care & Relevance of Tac levels

Patients have many doubts regarding post-transplant care, especially with regard to ‘tac level’, a concept encountered during post-transplant follow-up. KWF organized a session on 4th September, 2020, with Dr. Vijay Kher, Chairman, Nephrology, Medanta Kidney & Urology Institute, New Delhi, to address concerns and queries related to maintaining tac level. The session was moderated by Maryann Manasseh.

At the outset, Dr. Vijay establishes that kidney transplant is the best treatment for kidney failure, by providing statistics for the survival of transplant patients in comparison to patients on dialysis. A transplant provides the best long-term outcome in terms of improving the quality of life and being cost-effective.

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KWF launches a series of videos focusing on Diet Management in CKD.

KWF felt the pressing need to disseminate the information in our book Nutritional Secrets among a wider audience, so that a larger number of patients and caregivers can benefit from the abundant information it contains. To achieve this goal, Nutritional Secrets is being shared in the form of a series of videos, where dieticians and experts speak about the different components of a diet suitable for kidney patients. The series begins with a video featuring an Introduction, followed by a Promotion showing the usability of the book, and goes on to present information about the various elements of a diet, namely, macronutrients and micronutrients such as Protein and Carbohydrates, Sodium, Phosphorus, Potassium, Fluid, Fiber and Fats.

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Genetic Kidney Diseases: Early signs and tests

Genetic diseases can affect many members of a family over generations. Learning to catch early signs of the disease can enable effective treatment, since it can help to change the course of the disease or prevent its advancement. In a webinar moderated by Anjali Uthup Kurian, Dr. Sree Bhushan Raju, Professor and Head, Department of Nephrology at Nizam’s Institute of Medical Sciences, Hyderabad explained the genetic causes of kidney diseases. Although a difficult area of study, Genetics is important since every aspect of an individual’s external and internal features is determined by his genes. Dr. Raju establishes that having a family history of diabetes, hypertension, heart disease, are genetic risk factors along with obesity, race and ethnicity.

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Understanding Biopsy in-and-out

An interesting webinar on the diagnostic procedure known as biopsy was held on September 9, 2020. The guest speaker for the event was Dr. Narayan Prasad, Professor, Department of Nephrology, SGPI, Lucknow, and the event was moderated by Maryann Manasseh and Mr. Anand Lal Banerjee. Dr. Prasad interacted with participants in Hindi and English, explaining in minute detail, going into all the intricacies of the need, process and outcome of a kidney biopsy. He began by showing a video of a biopsy procedure being carried out to demonstrate the precision with which it is conducted.

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Kidney warriors speak about their life experiences with CKD

Patients with CKD, undergoing dialysis, or post-transplant, have to deal with various issues and complications related to disease management. While health issues assume priority, dealing with work related matters, concerns about a career, managing finances, etc. are also issues that require equal attention. Being able to successfully strike a balance between all these will ensure a happy and stress-free life, keeping one motivated to remain active and productive in spite of kidney disease. 

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Insights and progressive developments in transplantations in India

The second event in our series of educational webinars on 29th August 2020, sought to educate the warriors on why transplant is the best treatment for ESRD patients. The webinar hosted by MaryAnn Manasseh, gave us an insight into the progressive development in transplantation in India. Dr. Sundar Sankaran, renowned Nephrologist from Manipal Hospitals, Bengaluru is head of International transplant services, and also founder member of various other Nephrology organizations. He explained how a transplant enables one to lead a near normal life with improved physical and mental health.

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Right Steps to Manage Dialysis And The Journey of a CKD Patient

KWF started its series of educative webinars on different aspects related to kidney disease, with the aim of educating patients, in order to equip them with the right information required to understand the disease, and know how to manage it. The series kick started with its first episode on 22nd August 2020, with a session hosted by our own warrior-caregiver Maryann Manasseh, who has been with us as the Voice of Patients in KWF. Dr. Avinash Ignatius, nephrologist and member of the KWF family gave a brief introduction about the setting up of KWF and its journey so far, highlighting its purpose and aims. The webinar series intends to fulfil the need to continue the activities of KWF in the background of the COVID 19 pandemic, which has put a halt to the educational events that were regularly conducted in various cities.

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All through its three years of work, while Kidney Warriors Foundation has been helping people diagnosed with kidney disease in various ways, we have consistently believed that being diagnosed with kidney disease is not the end of life. A patient should not stop living, and should not give up, but fight back as a warrior. The best way to do this is to know the disease, catch early signs, and know how to manage it, so that one can live life in the best way possible. 

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CHANGE THEIR WORLD. LET US ALL JOIN HANDS AND HELP EACH OTHER.