Women across India, living in rural areas face similar issues: Long working hours, poverty, financial constraints, illiteracy, lack of proper hygiene, unconcerned husbands, and medical complications. Poverty, illiteracy and lack of medical facilities inhibit women from reaching out to the nephrologist in time, thus delaying treatment. Their faith in local quacks proves to be a major hindrance. A vital issue is the marriage of young girls who have been afflicted by the disease. Questions of who will marry them, will they survive, will they concieve? – form an endless list. KWF has started campaigns towards creating awareness amongst these women.
Fight for Life, Shantanu's book, tells us about his determination to fight against all odds to stay alive. Once his book was published, he decided to start blogging. The idea was simple: to inform the reader why he wrote the book, and to include excerpts from his book. The blog begins where the book leaves off, with notes on his journey post the book, between 2012 and 2015.
Samiir had a large social circle and his love for adventure sports ensured that his friends circle only got larger. With time, his friends started moving to other cities, getting married, and got busy with their own lives. About the same time, Samiir was diagnosed with Mpgn ( Membrano proliferative glomerulonephritis), and began dialysis. Being single, lonely and frustrated, he was thrown off balance. With no one to share his feelings and frustrations, he took to blogging. That was how his blog came into being.
Kamal, diagnosed with ESKD (End stage kidney disease) 23 years ago had to undergo a gamut of treatments for Atypical HUS, his primary disease. He has been on dialysis all these years and is currently on daily nocturnal home HD. He is the co-founder of NephroPlus, and has years of experience with in-centre HD, PD, kidney transplant and home HD. Kamal embarked on the hitherto Uncharted territory of blogging at a time when it was relatively new to the internet, and content writing by a patient was unheard of. He regularly updates the blog with information and tips for patients to lead a normal and complete life on dialysis.